Advance Care Planning Initiative - #ISaidWhatIWant
Nearly 20 nursing specialty organizations representing more than 700,000 nurses have joined together to promote advance care planning (ACP), encouraging nurses to lead by example and establish their own advance care plan. Even though most nurses are familiar with ACP, many do not have a plan in place, and this initiative is to help nurses create their ACP.
The #ISaidWhatIWant social media initiative was developed in response to the work done at the 2017 Palliative Nursing Summit hosted by the Hospice and Palliative Nurses Association, which brought various nursing specialties together to develop a collaborative nursing agenda regarding advance care planning, pain and symptom management, and transitions and coordination of care. Following the summit, participating organizations formed work teams to develop specific programs that will ultimately seek to influence public health by engaging nurses in targeted initiatives to enhance the care and outcomes of patients and their families.
ACP is a process for patients and their families to discuss their wishes and goals of care for treatment and end-of-life care, clarify related values and goals, and state preferences through written documents and medical orders. This process can start at any time and be revisited periodically but becomes more focused as health status changes. In situations where a patient's decision-making capacity is limited, healthcare providers turn to family members to make decisions. When there have been no ACP conversations between the patient and family, family members are left to make decisions regarding life-sustaining treatment without input from the patient or with little knowledge of the patient's wishes.