Children & Young Adults: Neuromuscular Disease
Children & Young Adults: Neuromuscular Disease
Palliative Care of Children and Young Adults Living with Neuromuscular Disease presented by Vanessa Battista MS, RN, CRNP-BC.

Participants will learn specific ways in which palliative care teams can partner with neuromuscular teams to provide support to families and guide them through the shared decision making process for Children and Young Adults Living with Neuromuscular Disease.

Pediatric palliative care provides families with support to help them navigate options and make choices that are best for their children. Recent developments in treatments of neuromuscular diseases have presented families with an increasing number of care options. These treatments, although successful, are not cures, and families benefit from shared decision-making while navigating their child's illness journey.

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